Make Aged Care Fair
For many people living with MND the roll out of the National Disability Insurance Scheme (NDIS) has improved their quality of life, and more people than ever have received packages of support that are helping them to maintain their independence and live better, safer and for longer.
Unfortunately, the NDIS is not available for everyone and those diagnosed with MND when aged 65 and over are forced to rely on Aged Care - a support service that is designed for age-related conditions and does not offer the provision needed for those with progressing neurological conditions and complex disability needs.
We know Aged Care is failing people living with MND in Australia, and this has to change, fast. That’s why we are launching Make Aged Care Fair - a campaign to improve access to Aged Care services and make sure people diagnosed with MND when aged 65 and over receive the care, support, aids and equipment they need to maintain independence and stay at home as long as they wish.
We have raised these issues with decision-makers, but we need your help to make sure they listen. Please take a few seconds to join the campaign and we will keep you up to date with opportunities to get involved and all the latest updates.
Read Bob and Julie's story to find out more about how the Aged Care System is failing people with MND.
Around 50% of people will be aged 65 or older when diagnosed with MND.Deloitte Access Economics 2015, Economic Analysis of MND in Australia
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Until there is a cure for MND, there is care. We campaign to help make sure people living with MND of all ages and backgrounds receive the right care, in the right place at the right time.
We put together an Action Framework which is the backbone of all our campaigning work and seeks five commitments from our politicians and policy makers to improve the lives of people living with MND and their families:
- Improvements to aged and disability care
- Timely access to a full range of assistive technology
- Development of National MND Guidelines
- A specific commitment to fund specialist MND multidisciplinary clinic coordinators
- Increased investment in research
Read the full MND Australia Action Framework.
With your help we can make sure the voices of people living with MND, their families and carers are heard by our politicians, decision makers, Government and service providers to raise awareness and ensure people with MND get the care and support they need and deserve.
If you want to join us, please sign up and join our network of campaigners.