MND Australia is the national voice (peak advocate) for MND. Together with the state MND Associations we advance, promote and influence MND care and research with a vision to achieving a world without MND.
MND Australia works to improve the lives of all Australians impacted by MND by influencing policy, providing trusted information, raising awareness, and promoting and funding the best research.
The six state MND Associations, representing all states and territories, are members of MND Australia. The MND Research Institute of Australia (MNDRIA) is the research arm of MND Australia. The MND Association of New Zealand is an associate member of MND Australia.
Research is the only way that we can change the future of motor neurone disease (MND). Every dollar we receive for research is directed to MNDRIA and invested in research with the best chance of understanding the causes, developing effective treatments, improving healthcare and finding a cure for MND. We believe that it is only a matter of time and hard work before we unravel MND’s mystery. A cure is out there and our researchers are working hard to find it. The key to quality and length of life for people living with MND lies in access to the best possible, evidence and needs based care including coordinated multidisciplinary care, riluzole, non-invasive ventilation, nutritional support, and support and services from the state MND Associations.
The state MND Associations support over 80% of all people diagnosed with MND in Australia. The state Association support service staff and MND advisors aim to provide the following services:
  • tailored and expert information
  • active assistance to members
  • home visits and ongoing support
  • assistance in accessing MND clinics and local services
  • equipment provision or assistance in accessing equipment from government agencies
  • peer support, support groups and information programs
  • carer workshops
  • information and education for health and community care professionals
  • local advocacy and influencing
  • volunteers

What is motor neurone disease (MND)?

MND is the name given to a group of neurological diseases in which motor neurones, the nerve cells that control the movement of voluntary muscles, progressively weaken and die. With no nerves to activate them, the muscles of movement, speech, swallowing and breathing gradually weaken and waste, and paralysis ensues.

Take a look at the video below to find out more about motor neurone disease.